{"id":11,"date":"2020-02-17T02:10:06","date_gmt":"2020-02-17T02:10:06","guid":{"rendered":"https:\/\/www.savelandon.com\/?page_id=11"},"modified":"2020-02-20T01:01:55","modified_gmt":"2020-02-20T01:01:55","slug":"about-landon","status":"publish","type":"page","link":"https:\/\/www.savelandon.com\/","title":{"rendered":"About Landon"},"content":{"rendered":"

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As an African American, my chances of finding a blood stem cell match to save my life is less than 25%.\u00a0 Make History today!\u00a0<\/p>\n

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How You Can Make a Difference<\/h2>\n

Register online (CLICK HERE<\/a><\/span>) or Contact Us<\/a><\/span> for questions<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ custom_padding_last_edited=”on|phone” _builder_version=”4.0.6″ background_color=”#ffffff” max_width=”1200px” custom_padding=”70px|80px|150px|80px|false|false” custom_padding_tablet=”|80px||80px|false|true” custom_padding_phone=”40px|30px||30px||true” box_shadow_style=”preset3″ box_shadow_vertical=”40px” box_shadow_blur=”100px” box_shadow_spread=”-30px” box_shadow_color=”rgba(0,0,0,0.22)” use_custom_width=”on” custom_width_px=”1200px”][et_pb_column type=”1_2″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb _builder_version=”4.3.2″ header_font=”|700|||||||” header_font_size=”16px” header_line_height=”2em” body_font_size=”15.6px” body_line_height=”2em” custom_margin=”20px|||||” body_text_align_tablet=”center” body_text_align_phone=”center” body_text_align_last_edited=”on|phone” body_font_size_tablet=”” body_font_size_phone=”” body_font_size_last_edited=”on|desktop”]<\/p>\n

On January 4th<\/span>\u00a0the new year took an unwelcoming change for our 5-year-old son Landon Alexander McMath.<\/strong><\/em><\/span><\/p>\n

Landon, a completely normal kid, was admitted to the hospital for a fever and then started having seizures lasting over 30 minutes. To prevent brain trauma, the doctors recommended an induced coma, this also gave doctors time to develop a firm diagnosis.\u00a0 After 21 days, the tests were still coming back negative, however, our family had our breakthrough. Landon\u2019s seizures and brain activity were finally under control and the doctors were able to remove Landon from a coma state. His first words were, \u201cI can see you\u201d.<\/p>\n

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After a month, we finally got the news! The doctors said, we typically find out the diagnosis during an autopsy, but it has been determined that Landon has a rare genectic disorder called \u00a0XLP, short for X-linked lymphoproliferative syndrome,\u00a0<\/strong><\/a><\/span>Individuals with XLP are develop hemophagocytic lymphohistiocytosis (HLH). HLH is a rare disorder of the immune system causing uncontrolled inflammation that damages organs of the body leading to rapid death. The disease is seen so infrequently that only approximately 400 boys have been diagnosed worldwide, according to the XLP Research Trust.\u00a0Unfortunately, many physicians are not aware of HLH. As such, it is often misdiagnosed and\/or diagnosed too late.<\/p>\n

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If untreated, approximately 70 percent of patients with XLP die by the age of 10. Currently, the only cure is a stem cell transplant, coupled with chemotherapy.\u00a0 The chemotherapy gets rid of the bad cells, while the stem cell transplant replaces the body with good cells.<\/p>\n

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While our family feels so blessed to find out Landon\u2019s diagnosis, we are confronted with one major obstacle\u2014finding a donor.\u00a0 In the African American community, there is a 19% likelihood that our son will find a donor, simply because African Americans are less likely to donate blood\/bone marrow, whereas white American of European descent has a 75% chance of finding a perfect match in the national donor registry.<\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ fullwidth=”on” admin_label=”Volunteer” _builder_version=”3.22″ collapsed=”off” box_shadow_style__hover=”none” box_shadow_style__hover_enabled=”none” box_shadow_color__hover=”rgba(0,0,0,0.3)” box_shadow_color__hover_enabled=”rgba(0,0,0,0.3)”][et_pb_fullwidth_header title=”Be a Donor – Be the Match” text_orientation=”center” button_one_text=”Learn More” button_one_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjEzIn19@” background_overlay_color=”rgba(14,113,98,0.9)” _builder_version=”4.3.2″ _dynamic_attributes=”button_one_url” title_font=”Faustina|600|||||||” title_font_size=”42px” title_line_height=”1.4em” content_font=”||||||||” content_line_height=”2em” background_image=”https:\/\/www.savelandon.com\/wp-content\/uploads\/2020\/02\/charity-24.jpg” parallax=”on” parallax_method=”on” custom_button_one=”on” button_one_text_size=”14px” 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Today, we are hoping to change the statistics and increase diversity in the bone marrow donor registry, while increasing awareness about XLP throughout our journey to save Landon\u2019s life.<\/p>\n

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For Black History month, we are challenging you to Make Saving a Part of Your Legacy. Despite race, we encourage anyone and everyone to donate and give the gift that keeps on giving click here to be the match.<\/p>\n

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Get in Touch. Get Involved.<\/h2>\n

If you are in need of additional information, feel free to contact us. We are full time caregivers for Landon, so our replies may not be prompt.<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.0.6″ max_width=”850px” use_custom_width=”on” custom_width_px=”850px”][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”info@savelandon.com” use_icon=”on” font_icon=”%%238%%” icon_color=”#26c699″ icon_placement=”left” image_max_width_phone=”60px” image_max_width_last_edited=”off|desktop” _builder_version=”4.0.6″ header_font=”|700|||||||” header_font_size=”16px” header_line_height=”2em” body_line_height=”2em” text_orientation=”center” background_layout=”dark” header_text_align_tablet=”” header_text_align_phone=”left” header_text_align_last_edited=”on|phone” locked=”off”][\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_blurb title=”Call Us: 334-306-1491″ use_icon=”on” font_icon=”%%264%%” 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